Living with dialysis treatment means disturbance and adjustment in one’s life and it is important for health care professionals to share persons’ personal understanding and experiences in order to provide good nephrology nursing care. A comprehensive understanding is lacking of the experiences persons with end-stage-renal-disease have of automated peritoneal dialysis (APD) and of the conditions influencing these experiences.The thesis consists of two studies, where the first is an integrative literature review of scientific articles with the aim to describe every day life with APD treatment. The review showed that patients on APD had significantly more time for work, family, and social activities as compared to continuous ambulatory peritoneal dialysis (CAPD). Mental health was found to be better in APD than compared to patients on CAPD. Findings even suggested that the use of APD to treat elderly patients was effective. Not one study was found from the APD patient’s perspective. The second study is an empirical part where six adults volunteered to be interviewed for their lived experiences of APD treatment…
Contents
INTRODUCTION
BACKGROUND
HISTORIC FLASH-BACK
TYPES OF PERITONEAL DIALYSIS
Continuous ambulatory peritoneal dialysis
Automated peritoneal dialysis
Patient’s lived experience with renal replacement therapy
CHRONIC KIDNEY DISEASE
Symptoms of chronic kidney disease
End-stage renal disease
Incidence and prevalence of chronic kidney disease
OVERALL AIM
PART 1: Literature review
AIM
METHOD
INTEGRATIVE REVIEW
RESULTS
LIFE STYLE
QUALITY OF LIFE IN PATIENTS ON APD
COMPLICATION
COMPLIANCE
NUTRITION
APD AND AGE
PATIENT PREFERENCE AND SELECTION
DISCUSSION
METHODOLOGICAL CONSIDERATIONS
RESULTS
CONCLUSION
PART 2: Empirical study
INTRODUCTION
CONCEPTUAL FRAME
AIM
METHOD
PARTICIPANTS
DATA COLLECTION
THE QUALITATIVE INTERVIEW
THE INTERVIEW
DATA ANALYSIS
Transcribing interviews
ETHICAL CONSIDERATIONS
RESULTS
CHOICE OF DIALYSIS MODALITY
One’s own informed choice
TRANSFER TO AUTOMATED PERITONEAL DIALYSIS
More or less one’s own informed choice
EFFECTS ON DAILY LIVING ON DIALYSIS
Modifying the environment at home
Adjusting to in course of the disease
LIVING AN EVERYDAY LIFE ON DIALYSIS
Social activities
Life that cope with dependence of dialysis treatment
Role disturbance and social relationships
Social network’s understanding of dependence
Compliance to treatment
Contacts with health care professional
Adapting and planning to carry on daily living
Avoiding and giving up
THOUGHTS ABOUT THE FUTURE
From relief and gratitude to fear
DISCUSSION
METHODOLOGICAL CONSIDERATIONS
RESULTS
CONCLUSION
ACKNOWLEDGEMENTS
REFERENCES
APPENDIX
Author: Ann-Christin Karlsson
Source: Blekinge Institute of Technology
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